All talks are in the English Language, with added subtitles to help accessibility. To add subtitles in your chosen language, just click on the talks on the right of the screen at their allotted time.
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Meet our Speakers
Find out more by clicking on each speaker's profile below.
Ana Abdala
Stuart Cobb
Neurogene
Pamela Diener
Sonia Guil
Francois Houyez
Becky Jenner
Linn Johnels
Nancy Jones
Vice President, Clinical Development,
Neuren
Walter Kaufmann
Chief Scientific Officer for Anavex & Adjunct Professor of Human Genetics at Emory University,
Anavex Life Sciences Corp.
Meir Lotan
Benit Maru
Chief Medical Officer, Head of Clinical Development,
Taysha Gene Therapy
Kathleen Motil
Jeffrey Neul
Jean-Christophe Roux
Paramala Santosh
Karen Spruyt
Gillian Townend
Daniela Tropea
Aglaia Vignoli
Helena Wandin
Talks
TEST TALK FOR COUNTRY HOSTS (UNIVERSAL)
16 March 2023, 11:00 AM
Welcome and Introduction (Dutch)
17 March 2023, 08:30 AM
Rett Syndrome: The road from recognition to treatment (Dutch)
17 March 2023, 08:45 AM
Gene Therapy: Hope, Myth and Difficulty (Dutch)
17 March 2023, 09:35 AM
Human Stem Cell-based Models for the Study of Rett Syndrome: Overview and Perspectives (Dutch)
17 March 2023, 09:50 AM
Live Q&A to Speaker Panel
17 March 2023, 10:35 AM
Genetic Therapy Approaches in Rett syndrome - an update (Dutch)
17 March 2023, 12:15 PM
Neurogene Update: NGN-401: A Self-regulating Gene Therapy for Rett Syndrome (Dutch)
17 March 2023, 12:35 PM
Neuren Update: Trofinetide in Rett Syndrome (Dutch)
17 March 2023, 12:45 PM
Taysha Update: An Investigational Approach to Gene Therapy for Rett Syndrome (Dutch)
17 March 2023, 01:00 PM
Burden of Illness in Rett Syndrome: Initial Evaluation of a Disorder-Specific Caregiver Survey (Dutch)
17 March 2023, 01:10 PM
Clinical Trial Registries and Databases (Dutch)
17 March 2023, 01:20 PM
Patients at the European Medicines Agency (Dutch)
17 March 2023, 01:35 PM
Family Contact and Engagement: Why and How (Dutch)
17 March 2023, 02:15 PM
Live Q&A to Speaker Panel
17 March 2023, 03:00 PM
Recap & Introduction (Dutch)
18 March 2023, 08:00 AM
I Can’t Get No Sleep… (Dutch)
18 March 2023, 08:15 AM
Epilepsy in Rett Syndrome (Dutch)
18 March 2023, 08:30 AM
Control of Breathing (Dutch)
18 March 2023, 08:50 AM
Gastrointestinal Myths and Misconceptions in Rett Syndrome (Dutch)
18 March 2023, 09:25 AM
Identifying and Managing Emotional, Behavioural Autonomic Dysregulation in Rett Syndrome (Dutch)
18 March 2023, 09:40 AM
Live Q&A to Speaker Panel
18 March 2023, 10:30 AM
Physical Therapy Interventions in Rett Syndrome (Dutch)
18 March 2023, 12:15 PM
Communication Research and the Rett Syndrome Communication Guidelines (Dutch)
18 March 2023, 12:25 PM
Communication Continued: Well-being and Emotional Competence (Dutch)
18 March 2023, 12:35 PM
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